Pregnancy can be a difficult time for any woman. Along with the physical strain, there’s the constant fear that something might go wrong. Usually, those worries disappear the moment a healthy baby is placed in the mother’s arms — but Jennie Wilklow never got that relief.
Jennie’s pregnancy was normal, and all checkups showed her baby was healthy. But at week 34, she needed an emergency C-section. The birth went smoothly, and Jennie heard her daughter cry — a moment of joy that quickly disappeared when the baby’s face began to change.
Doctors and nurses panicked as the newborn’s skin suddenly hardened and cracked, leaving wounds across her body. Jennie was sedated, and when she woke, she learned her daughter Anna had Harlequin ichthyosis — a rare genetic disorder causing skin to grow 14 times faster than normal. Babies with the condition often die within days, and survivors face lifelong challenges.
Jennie was terrified, especially after seeing her husband’s shock. She spent days researching the condition and felt overwhelmed by Anna’s grim outlook, even questioning whether survival would mean suffering.
But Anna proved to be a fighter. With doctors’ help, she survived, and her parents brought her home. Caring for her was demanding: Jennie applied petroleum jelly every two hours and bathed her for hours each day.
Over time, Jennie’s perspective changed. She refused to limit her daughter’s potential and decided Anna would be encouraged to achieve anything she wanted. Jennie also created an Instagram account to share their journey.
Today, she sees her daughter as a gift: “Anna was meant for me, and I for her. Together we will show the world how beautiful life can be.”